Motor neurone disease (MND) is a fatal, rapidly progressing neurological condition affecting more than 5,000 adults in the UK at any one time. The disease causes messages from nerves (motor neurones) in the brain and spinal cord that control movement to gradually stop reaching the muscles, leading them to weaken, stiffen and waste.
These are exciting times for our Association, and in 2025 we are looking for a new Co-Opted Trustee – who feels just as passionately about our work as we do – to help us take the next steps towards achieving our vision of a world free from MND.
As a membership organisation, our members have a say in how we are run and play a key role in the governance of the Association. The Association has two types of Trustees, Elected Trustees and Co-Opted Trustees. Elected Trustees are voted for by our members. Those receiving the greatest number of votes fill the vacancies on the Board and are announced at the Annual General Meeting each year. Co-Opted Trustees are openly advertised positions and are approved by the Board of Trustees.
Co-Opted Trustees do not stand for election but are appointed by the Board following an open recruitment process. They serve for initial three-year term and can serve for a maximum of three consecutive terms.
Trustees are volunteers who have overall legal responsibility for the charity and play a vital role in shaping our work. Their leadership ensures we continue to support people living with MND, their carers, and families while research into effective treatments progresses.
To make an application, please click on the apply now button below, with the following prepared:
Alternative application process
Closing date
Monday 6th June 2025
Preliminary interviews
w/c 16th June 2025
Final Panel interviews
w/c 30th June 2025