Chair
Debra
Bracknell
Voluntary basis
The history of DEBRA dates from 1963 when Phyllis Hilton had a daughter called Debra who was born with Dystrophic EB. In 1978, after realizing treatment was not advancing, Phyllis organised a meeting for parents of children with EB in Manchester and it was this meeting that led to the charity officially being formed as the world’s first EB patient support organisation, taking its name from Phyllis’ daughter. The DEBRA name was also intended as an abbreviation of Dystrophic Epidermolysis Bullosa Research Association (D.E.B.R.A).
THE ROLE
Our current Chair retires from office in 2025 and we are now seeking to appoint a new Chair, who will continue and build upon a legacy of providing clear and inclusive leadership of the Board of Trustees and, with the board, hold the Chief Executive to account as we deliver on our five-year strategy, ensuring we stay true to our mission and vision, and maximise our impact. Other duties demanded by this appointment are championing our values, leading by example and, in partnership with the Chief Executive, acting as a public face of the charity.
We are keen to hear from outstanding leaders with a track record of achievement and who can evidence a history of sound judgement, who share our values and who can engage, inspire, and influence at all levels. You will bring a sophisticated understanding of the Chair role, with knowledge of Board development to include performance management, succession planning, and the effective leadership of trustee teams.
How to apply
To make an application, please click on the apply now button below, with the following prepared:
- your CV (no more than three sides).
- A covering letter that sets out your motivation for the role and describes the specific experience you can bring to the appointment.
Closing date for applications
Friday 21st March 2025
Preliminary interviews
First half of April 2025
Final Panel interviews
Late April / Early May 2025