Chief Executive

Motor Neurone Disease Association
Flexible location
Up to £130,000

The MND Association focuses on improving access to care, research and campaigning for those people living with or affected by MND in England, Wales and Northern Ireland. We are a membership organisation with over 10,000 members forming a powerful national and local network that provides information and support. We have over 7,000 active volunteers in England, Wales and Northern Ireland and nearly 200 paid staff, all dedicated to improving the lives of people affected by MND, now and in the future. We improve care and support for people with MND, their families and carers.

The Role

We are entering a very exciting and potentially life changing time for people with MND. With new funding of £50m secured towards research, we are on the cusp of being able to develop effective treatments for some if not all, of our community.

Although you don’t need to have a health background, you will need to be able to demonstrate you understand the complex, often highly challenging and emotive environment we operate in, and be able to understand and engage credibly with stakeholders in the medical and pharmaceutical worlds as well as the research community.

We are an open, non-hierarchical and inclusive organisation and as our next chief executive you will actively embrace and look to maintain the positive organisational culture that exists here. We want our employees, volunteers and Trustees to represent the diversity of the communities of which we are a part, and for our research, services and influencing work to reflect the diverse needs of all those living with MND. 

If this role sounds exciting and you are driven to lead us through the next stage of our journey, I look forward to hearing from you.


Download the candidate brief to find out about the role.