Chief Executive Officer
Circa £65,000 per annum




Our new Chief Executive will be essential in delivering against the strategy. You will build on the small existing team and unite people through a common vision. We are looking for a transformational leader who is collaborative, transparent and authentic, with a good understanding of small patient populations and their unique needs and challenges, and the drive to secure the future sustainability of the charity.
You may be operating as a CEO currently with a desire to lead an ambitious charity or you may be operating in a senior leadership role in a larger organisation looking to step into your first CEO role. Whatever your background, you will be passionate about the needs of people living with IMDs and will be committed to finding new, creative and impactful ways of working for us to provide the best possible support to those that need it most.