Director of Engagement

Motor Neurone Disease Association

The MND Association focuses on funding research, improving access to care and campaigning for people living with or affected by MND in England, Wales and Northern Ireland. We have over 11,000 members forming a powerful network providing information and support for people with MND, their families and carers. We fund and promote research that leads to new understanding and treatments, and brings us closer to a cure. We campaign and raise awareness so the needs of people with MND are recognised and addressed by wider society. We have over 10,000 active volunteers in England, Wales and Northern Ireland and 220 employees, all dedicated to improving the lives of people affected by MND, now and in the future. We improve care and support for people with MND, their families and carers. People with MND, their families and carers are at the heart of everything we do.


We’re looking for a strategic, visionary leader with exceptional communication skills and experience of leading a multi-functional team that embraces policy, campaigns, patient involvement, marketing, brand, VIP/Ambassadors  and communications, to help take our brand to the next level and enhance our impact further. You will be experienced at managing strategic stakeholder relationships  at a senior level, and adept at the role we play in influencing national public policy. An understanding of the key health and social care issues, NHS structures and the know how to engage effectively with Westminster and the devolved assemblies in Wales and Northern Ireland, are important aspects to this role. Collegiate and driven to succeed, you will work closely with me and the wider leadership team to lead the charity towards continued success. 

Whatever your background, you must be able to demonstrate a real understanding of what motivates people to work or volunteer with us and the complex, often highly challenging and emotive environment we operate in.

We are an open, non-hierarchical organisation and as our Director of Engagement you will actively embrace this approach. We are on a journey of transformation and are looking for leaders who can motivate, seize opportunities, empower their teams and innovate. We want our employees, volunteers and trustees to represent the diversity of the communities of which we are a part, and for our research, services and influencing work to reflect the diverse needs of all those living with MND. 


Download the candidate brief to find out about the role.