Deputy CEO

c£110,000 per annum

DEBRA is a national charity and patient support organisation for people living with the rare, genetic skin blistering condition, epidermolysis bullosa (EB) also known as ‘Butterfly Skin’. Our vision is for a world where no one suffers with EB, and we will not stop until this vision becomes a reality. Established in 1978 by Phyllis Hilton, whose daughter Debra had EB, DEBRA UK is now a national charity supporting 3,800 members. We employ over 380 staff and 1,100 volunteers who support us across a network of 100+ charity shops located throughout England and Scotland.


In our new Deputy CEO role, we are seeking an energetic and passionate leader, who enjoys driving transformation and has a successful track record of understanding what it takes to build and support successful cultures and organisations. The primary purpose of the role will be to support the Chief Executive in delivering our five-year strategy, working with other directors to enhance our leadership approach and deliver continued growth and impact. They will work with other Directors to enhance our operations and culture so that we embed our strategy and new ways of working including working with the Directors to embed commercial acumen across Debra UK and grow our charity retail income. The role will lead strategic oversight and direction of internal operations and have overarching responsibility for Retail, People, Property, IT and Health and Safety.

You will be an outstanding leader with experience and sound judgement, who shares our values and who can engage, inspire, and influence at all levels. With strong communication skills, commercial and financial acumen, a positive attitude, and a commitment to continuous improvement, you will be at the helm of ensuring a truly motivated and values-led culture at DEBRA UK in order to continue to grow our care and support and improve the quality of life for people living with EB.

If you believe you have the skills and attributes for this role, we would be very pleased to hear from you.


Download the candidate brief to find out about the role.