Fundraising Committee Member
Motor Neurone Disease Association
Primarily Virtual - In person meetings held in Northhampton or London Offices
Voluntary
MND kills a third of people within a year and more than half within two years of diagnosis. It affects people from all backgrounds and a person’s lifetime risk of developing MND around 1 in 300. Today six people will be diagnosed and six will die from MND. There is no cure.
The MND Association focuses on funding research, improving access to care and campaigning for people living with or affected by MND in England, Wales and Northern Ireland. Our network of members provide information and support for people with MND, their families and carers. We fund and promote research that leads to new understanding and treatments and brings us closer to a cure. We campaign and raise awareness so the needs of people with MND are recognised and addressed by wider society.
THE ROLE
We are entering a very exciting and potentially life changing time for people with MND. With the disease having a high profile and more funds coming into research, we are hoping to see the development of new treatment options in the future, giving hope to our community and allowing them choice and control in managing MND.
Our charity has grown rapidly in recent years. We now need to build on our success and ensure we are well positioned for further growth, elevating our profile and extending our reach and impact.
We have developed our new strategy and are working towards a launch date of April 2025 – we are ambitious, bold and unapologetic in our pursuit of excellence in every aspect of our work on behalf of people with MND.
INFORMATION
Download the candidate brief to find out about the role.
DOWNLOADHow to apply
To make an application, please click on the apply now button below, with the following prepared:
Your CV (no more than two sides).
A covering letter that sets out your motivation for the role and describes the specific experience you can bring to the appointment.
We would also be grateful if you would complete the Equality and Diversity monitoring form on the online application process. This form is for monitoring purposes only and is not treated as part of your application.
Closing date: Friday 25th September
Final Panel interviews online: w/c 5th October 2026