Chair
Motor Neurone Disease Association
In person meetings will be held at either our Northampton or London offices
This is a voluntary position, with reasonable expenses paid
The Motor Neurone Disease (MND) Association is dedicated to improving the lives of people affected by MND, now and in the future. We fund research, improve care and provide support for people with MND, their families and carers. As a membership organisation with more than 12,000 members and 13,000 volunteers, we have a powerful national and local network united behind our vision for a world free of MND. People with MND, their families and carers are at the heart of everything we do.
THE ROLE
As our new Chair, you will help us steer a period of strategic development that is bold and ambitious in its pursuit of excellence on behalf of people with MND. You will be leading excellent and committed Board colleagues and working with our Chief Executive Officer (CEO) and her team to seize the opportunities and handle the inevitable growing pains inherent in change and expansion. Outside the organisation, you will be a trusted and persuasive ambassador with a range of stakeholders including policy makers, opinion formers and partners.
The successful candidate will share our drive to create a world free of MND and empathise with the issues ahead for an organisation like ours. You needn’t be from the health sector to play your part as Chair; however, you will understand the complexities of leading a significant organisation going through change.
We’re looking for a successful and commercially astute senior leader who understands this role and what it means to chair a growing organisation in an environment that is often highly challenging and emotive. An intuitive understanding of good governance will also be essential, along with an accessible and personally flexible style. We’re driven by our vision, and see the collective of Executive and Trustee voices working as a unitary Board as the most effective route to achieving it. Someone collegiate who builds rapport and works through relationships will be the best fit for us.
INFORMATION
Download the candidate brief to find out about the role.
DOWNLOADHow to apply
To make an application, please click on the apply now button below, with the following prepared:
- Your CV (no more than three sides).
- A covering letter that sets out your motivation for the role and describes the specific experience you can bring to the appointment.
Closing date
Friday 31st October 2025
Preliminary interviews
w/c 17th November 2025
Final Panel interviews
w/c 8th December 2025