CEO

PSPA
Milton Keynes with two days a week in the office
Circa £80k
Hackney

PSPA is the only national charity offering support and information to people living with the rare, incurable, degenerative brain diseases called Progressive Supranuclear Palsy (PSP) and Corticobasal Degeneration (CBD). The charity also supports research into diagnosis, treatments and ultimately, a cure. Until then, we exist so that no one has to face living with these conditions alone.

THE ROLE

PSPA is the only national charity offering support and information to people living with the rare, incurable, degenerative brain diseases called Progressive Supranuclear Palsy (PSP) and Corticobasal Degeneration (CBD). We provide much needed support to people and their families living with these devastating neurological conditions. We also invest in research to deepen our understanding of the conditions with the goal of reducing the time to accurate diagnosis and discovering treatments and an eventual cure. And since 2024 we have increased our investment in awareness raising of these relatively unknown diseases.

For our new Chief Executive there is enormous opportunity to grow our profile and impact. This is a time for us to drive the charity forward with confidence and ambition. You will be a visionary and strategic leader with a deep sense of social purpose and a track record of leadership in a purpose-led organisation. We are a small team, and we are looking to you to motivate and empower our people and maintain our inclusive and collaborative culture. Our life changing work relies upon the generosity of our supporters, donors and volunteers and you will understand income generation and bring exceptional communication and collaboration skills.

You will bring enthusiasm, passion and drive combined with empathy and sensitivity to our cause. Your collaborative approach and entrepreneurial spirit will enable you to lead our dedicated and committed team with purpose and energy. 

INFORMATION

Download the candidate brief to find out about the role.

DOWNLOAD    
How to apply

To make an application, please click on the apply now button below, with the following prepared:

  • Your CV (no more than three sides).
  • A supporting statement (no more than two sides) that sets out why you think this role is the right move for you and how you meet the knowledge and experience criteria. 

Closing date
Monday 14th July 2025

Preliminary interviews with Starfish
w/c Monday 28th July and
w/c Monday 4th August 2025

Interviews with PSPA
w/c Monday 18th August 2025 

Apply