Chief Operating Officer

Motor Neurone Disease (MND) Association
Home based, with frequent travel to both Northampton & London offices
c. £110,000 per annum
Hackney

The Motor Neurone Disease (MND) Association is dedicated to improving the lives of people living with and affected by MND, now and in the future. We fund research, improve care, build partnerships and provide support for people with MND, their families and carers. As a membership organisation with more than 12,000 members and 13,000 volunteers, we have a powerful national and local network all united by our vision for a world free of MND. People with MND, their families and carers are at the heart of everything we do.

This disease is devastating, but we are determined to make a difference across everything we do. The profile of MND as a rare disease is high, with more funds coming into research, we are hoping to see the development of new and vital treatment options in the future, giving hope to our community and allowing them choice and control in managing this disease.

THE ROLE

We are looking for an exceptional Chief Operating Officer to join us at this transformative moment in our development. Working in close partnership with me as Chief Executive – acting as my deputy during any periods of leave – our Board of Trustees and executive leadership colleagues you will drive organisational performance, financial sustainability, planning, risk management, governance and digital innovation ensuring the charity works creatively, efficiently and effectively, whilst delivering maximum impact for the MND community. 

You will be a commercially astute, values-driven leader with a proven track record of operational excellence and strategic influence at the highest level. A qualified accountant who is already operating at board level you will have a strong grasp of corporate financial leadership gained in complex environments at times of change. A clear communicator, with an eye for detail and the ability to manage a wide and varied portfolio, these fundamentals will inspire you to deliver your best work. 

The MND Association is an open, non-hierarchical organisation and as our Chief Operating Officer you will actively embrace this approach. Whatever your background, you must be able to demonstrate a real understanding of what motivates people to work or volunteer with us and the complex, often highly challenging and emotive environment we operate in. 

INFORMATION

Download the candidate brief to find out about the role.

DOWNLOAD    
How to apply

To make an application, please click on the apply now button below, with the following prepared:

  • Your CV (no more than three sides).
  • A supporting statement (no more than two sides) that sets out why you think this role is the right move for you and how you meet the knowledge and experience criteria.

Alternative application process

  • To support an inclusive application process, we are open to receiving alternative applications. If you would like to apply via video or audio file, please send your recorded expression of interest to chris.milo@starfishsearch.com

 

Closing date
Friday 11th July 2025

Preliminary interviews with Starfish Search
w/c 21st July 2025 (online)

Interviews with MND Association
w/c 4th and w/c 11th August 2025

Apply